Resources
Some helpful links for others dealing with similar issues
CONGENITAL HEART DEFECTS
Organizations
- Ollie Hinkle Heart Foundation
- Mighty Oakes Heart Foundation
- Hearts Unite The Globe
Anna Marie Jaworski
Adults
- The Heart Dialogues
Leigh Kamping-Carder
- The Open Heart Club: A Story about Birth and Death and Cardiac Surgery
Gabriel Brownstein
GRIEVING A CHILD
Articles
- My Daughter’s Future Was Taken From Her, and From Us
Sarah Wildman
Books
- Once More We Saw Stars: A Memoir
Jayson Greene
- Why Religion? A Personal Story
Elaine Pagels
Podcasts
- Where’s The Grief
Jordon Ferber
- Dad Still Standing
Matt and Liam